Rubinstein-Taybi Syndrome Family Support Group Japan

Since 2000.8.18 Japanese



Welcome to the web site of RTS family support group Japan!


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Our annual family meeting was held in Mie , Japan on July 14 2012.
21 families gathered together.
Having lunch,we talked each other changing experiences and questions.
We had a very nice time in a friendly atmosphere. A doctor Mizuno and a genetic counselor Omachi joined us.


Our annual family meeting was held in Saitama, Japan on July 23 2011. 23 families participated. Three doctors and a social worker participated and lectured about the care and study of RTS children and adults. During the lectures the children enjoyed music performed by a volunteer group.

Our annual family meeting was held in kyoto, Japan on July 17 & 18 2010. 33 families participated. 4 doctors & a therapist attended at the meeting and lectured about the care and various problems of children and adults with RTS.
The titles of their lectures were "The study of RTS actual life survey","The genetics of RTS","The health control of RTS" and "The progress of movement and low mustle stress". The psychiatrist was absent preparing papers for "The support on autistic features".
Then the families were separated to several groups talking about various issues.
We had a very good time being together.
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Our annual family meeting was held in Yokohama Japan on July 26 & 27 2009.
27 families 84 people participated. Doctor Imaizumi and doctor Ishii attended at it and answered various questions and consultations from the participants individually.
We had a good time exchanging information about the care of our children and enjoyed listening and singing songs by music volunteer group.



We published a booklet about the adulthood of RTS in March 2009 by the result of questionnaire data targeting about 40 members having RTS people over 12 years old.
We hope for the better understanding of the adulthood of RTS by this booklet.

Our annual family meeting was held in Yokohama Japan on August 30 & 31 2008.
23 families participated. Doctor Imaizumi,doctor Hasegawa and doctor Ishii attended
at it and lectured about the health care and the problems of adulthood of RTS and the obsession of RTS.
We had a good time exchanging information about care of our children including the problems of adulthood of RTS.


Our annual family meeting was held in Osaka Japan on August 19 & 20 2007.
26 families participated. Doctor Okamoto (Osaka Medical Center and Research Institute forMaternal and Child Health) attended at it and lectured about the health care and the stimulating of speech development of RTS. We exchanged information including the problems of adulthood of RTS.

Our annual family gathering was held in Yokohama Japan on August 6 & 7 2006.
23 families including 6 families of first participation and 3 doctors attended at it.
We had a very good time by having the doctors answer the medical questions and
exchanging information each other.

We published a booklet titled "Rubinstein-Taybi Syndrome Q&A" in March 2006.


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"Rubinstein-Taybi Syndrome Q&A"
This booklet is originally written in Japanese . It was published to give some hints or information of child care both medically and mentally to families growing a child with RTS. It is made up by many actual experiences of our members.
We hope it will be helpful for the better understanding of this syndrome.


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